Me, Casey Jo & our Mom
Casey Jo finally got her phone call yesterday. I decided to post it today since today is Cystic Fibrosis Awareness Day....It seemed fitting.
UPMC called Casey yesterday and told her that she is not eligible at this time to be on the lung transplant list. She is too 'healthy' at this time. They want her to have as much use of her 'native' lungs as possible. They will be reevaluating her every 3-4 months, or if she gets worse, she can come in and they can retest her. Since she has already gone through testing, she already has a foot in the door. All she is waiting on now is to get progressively worse to be eligible.
How does she feel about this?
She said she is okay with what the doctors said, but would just rather have it sooner than later. "I'm tired of living life this."
I, personally, have mixed feelings about it. I am worried about her going through the surgery. On the other hand, I hate seeing her have a hard time breathing, having coughing fits to where she cant catch her breath and being constantly worn out. Thank you so much for all your wonderful comments and prayers! We greatly appreciate them.
This isn't the end. This journey is just beginning! I will post updates whenever anything comes up.