22 Days of Thankfulness Day 3 -This one is special to me!

I am thankful for every precious day with my sister Casey Jo.
 
 
I always try to keep the people in my life semi private. I try to never say their names.  My sister is an exception. She is one of the strongest people I know, and I want every one to hear her story.  My sister was born with a genetic terminal illness called Cystic Fibrosis.  She was diagnosed as a baby.  She has struggled with this disease every day of her life.

Here is a little video that helps explain Cystic Fibrosis:
 
In high school, I had a very good friend named Sarina.  Sarina and her younger brother both had CF.  Her brother Joshua passed away, and not to long after Sarina did too.  I hate this disease with a passion.  My beautiful sister looks like a normal "healthy" person on the outside.  But on the inside she struggles to breathe daily. (Ex:Try breathing through a coffee straw...every second of every day.) Her health keeps slowly declining.  Since her little body is burning so many calories just trying to breathe, she can't put on weight.  No matter how much she eats, she keeps losing weight. It has gotten so bad her doctors have put in a feeding tube.
 
This is called a Mic-key button.
 
The tubing for her feeding tube connects to her feeding tube and that is how she gets her nutrients.
 
There will definitely be more posts to come on CF. 
I try to spread awareness any chance I get.
 
Do you know anyone one with CF? If so share your story too! :)

24 comments :

  1. Your sister has a lovely face. Thanks for sharing her story. I hope you both have a good week.

    PS Thank you for the follow to Carole's Chatter. I am now happily following you back.

    pps It might be a good idea to put your link to your blog into your Blogger and Google profiles - I ended up searching in Google for it - luckily you had put the name in your comment - but Blogger won't let me copy directly out of a comment...

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    1. Thanks Carole! I will do that :)

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    2. Hi Jo, it's not showing up in either profile yet - suggest you have another go. Did you save the change after you made it - I sometimes get caught out by that! This has given me an idea for a new post in my sub blog Carole's Chatter Blog Tips - thanks for that!

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  2. Wow, your sister is so strong for overcoming this disease her entire life. When I found out I was pregnant they did genetic testing on me and found that I am a carrier for CF. That is when I became aware of this awful illness. Luckily my husband isn't a carrier so our daughter won't be affected but my heart goes out to all those who are. Hopefully they will find a cure soon!

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    1. Thank you Jenny! I thankful your husband isn't a carrier and your daughter doesn't have it! :)

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  3. Your sister is beautiful. Her smile shows how couragious and strong she is. I don't know anyone with CF...but I know what it feels like to love someone who battles with a disease daily. They become your hero. Thank you for sharing this.

    (I am following you back now.)

    Tami

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    1. I am sorry to hear you know what it feels like to know someone who battles a disease daily. Thanks for following back :)

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  4. Very touching story! Thanks for checking out my blog dear! Following you now :)

    http://letskisstomakeup.blogspot.com

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  5. Your sister is beautiful and I can tell she's strong. I'm happy she have you. And you know what? She's fighting hard thanks to you and your family. I don't know anyone with CF but I've heard of it. I will include her in my prayers. Thanks for stopping by my blog, I'm following you back.
    -Mariely

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    1. Thank you so much for your kind words and following me back :)

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  6. She is one of the toughest girls I Kno and is very dear to me.... You are a very good sister and you both are so lucky to have each other..... Love you both

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  7. She is one of the toughest girls I Kno and is very dear to me.... You are a very good sister and you both are so lucky to have each other..... Love you both

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    1. Awww thank you so much, we are lucky to have such a great Aunt too :)

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  8. I'm so sorry your family has to go through this and wish you all the best of luck. Your sister is beautiful and strong and deserves every chance she can get, I look forward to hear how she's getting on and so will be a new follower from now on. I cant't imagine going through something like that.
    All my Love
    www.eleanorgrace95.blogspot.co.uk
    xxx

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    1. Thank you so much Eleanor! Your kind words mean so much to me! I just love all my new blog friends. Y'all mean the world to me :)

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  9. She sounds like such a strong and inspirational person! Good luck to you and your family as you fight through this!
    Kal
    www.kalleemae.blogspot.com

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    1. She is very strong and inspirational! Thank you for your sweet comment :)

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  10. Your sister is very pretty. This is my first blog ever. I have never blogged before. I heard about 22 days of Thankfullness at the gym today so I googled and picked your blog to read. May god bless you and your sister.

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    1. Well I feel very honored then! :) Thank you for your kind words!

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  11. I went to high school with Casey and I knew she was sick sometimes but I wasn't sure what it was exactly. She is a very strong, wonderful, beautiful person. I don't keep contact with her anymore but she is in my prayers.

    SARA BARKER

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    1. Thank you so much Sara! Your comment means so much :)

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