I am thankful for every precious day with my sister Casey Jo.
Here is a little video that helps explain Cystic Fibrosis:
In high school, I had a very good friend named Sarina. Sarina and her younger brother both had CF. Her brother Joshua passed away, and not to long after Sarina did too. I hate this disease with a passion. My beautiful sister looks like a normal "healthy" person on the outside. But on the inside she struggles to breathe daily. (Ex:Try breathing through a coffee straw...every second of every day.) Her health keeps slowly declining. Since her little body is burning so many calories just trying to breathe, she can't put on weight. No matter how much she eats, she keeps losing weight. It has gotten so bad her doctors have put in a feeding tube.
This is called a Mic-key button.
The tubing for her feeding tube connects to her feeding tube and that is how she gets her nutrients.
There will definitely be more posts to come on CF.
I try to spread awareness any chance I get.
Do you know anyone one with CF? If so share your story too! :)