Casey Jo had a follow up appointment in Cleveland today!
When she left the hospital in early April her PFT was 23% and today it was up a little to 26%! Awesome! She did lose a couple pounds since leaving the hospital but has been maintaining her weight. Her appetite has recently gotten a little better but it's still hard for her to get back in the routine of eating again.
She has been having some high fevers (102-103) even while being on three antibiotics and her doctors aren't sure why they're breaking through. She has had fevers off and on her whole life, she has her doctors stumped!
She goes back for another check-up next month, so we'll keep you updated!