Casey Jo Hospital Update #1

Well at 7am they woke Casey Jo up to go down to get her PICC line! She was just a little tired. They got the line in with no problem. 

 

Casey Jo gets anxious about getting her PICC line placed so they give her something to relax her which makes her tired. She spent most of the afternoon napping today. She did wake up to eat which is great!!

Then she had a couple good friends come up to visit her, Mike and Phyllis! They brought her dinner and menus to order out! She also got to talked to Phyllis' son, Stevie, on the phone. Overall Casey Jo had a pretty good day!

Routine Cleveland Check-Up

Today, Casey Jo had a check up appointment with her CF doctor in Cleveland. 

She did lose some weight and her lung function was down to 21% from the last time of 27%

Her doctor wants her to come in on Monday and stay for 2-3 weeks for a 'clean out' before she goes to her transplant listing appointments in Pittsburgh in November. Usually she can go home on the IV meds but with the medication she will be on, she will actually need to stay to be monitored. We will keep you updated once she gets admitted!

 

Thank you for all your prayers!